Coming to New Hampshire, we have been able to meet some pretty amazing people. Actually, a lot of amazing people. People who will be our friends for life. One of these amazing families is the Layton's. They have a fantastic little girl named Leah. Leah has a disability that is called Rett Syndrome. All I can say about little Leah is that there is a twinkle in her eye that I have never seen, or probably will ever see from another human being. She and her family have taught me so much about life, patience, and love that I feel like a different, better, person for knowing them.
We were able to be able to join them for a Rett Syndrome Walk-a-Thon in Cape Cod, MA. Mike was already in NY for his internship, and was really disappointed to miss it... but it was a great little road trip for the boys and myself, and a great distraction from their dad starting a long summer internship.
Damon LOVES Leah and LOVES to make her laugh. I explained to him what this "walk-a-thon" was for, and why we were going to show our support. He thought it was fantastic, and said "I should make a sign to carry around while we walk!" I got Brixton asleep in our hotel, and Damon got all set up to make his poster. He came up with the slogan...and who knew he could draw block letters!
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| Rocking our Team Leah Bean t-shirts |
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| Brixton almost had a heart attack when he saw Mickey Mouse. I have a problem with this. |
Damon and Leah....probably watching Kung Fu Panda together.
Maren, Leah's mom, is not only a big blogger, she is an amazing writer. She is honest about the struggles that they deal with each day, but in the most inspiring way. We felt very lucky to be a part of this weekend with them. Miss Leah holds a very special place in all of the Holbrook hearts out here.
1 comment:
Um, I want to write something profound, but it's really hard to type through tears. So glad you could be there with us. It meant the word.
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